On Tuesday June 5, 2018 President Trump signed the STAR Act – which stands for Survivorship, Treatments, Access, Research. This is the largest most comprehensive childhood cancer specific piece of legislation to ever be passed. It opens the pathway to new treatments, expanded access to occurrence data and the National Childhood Cancer Registry, and clears the way for increases in NIH grants for survivorship research.
Gold Rush Cure’s co-Founder and President Sandy Barker fought hard for this legislation after many trips to DC.
Watch President Trump sign the bill:
Listen to Congressman Michael McCaul share his story of Sadie who got to follow the bill all the way through the process:
Here is a summary of what is in the bill: